What the heck is DSAP?????

I have now had a couple of days to digest my most recent visit to the dermatologist for the c&d procedure and getting the information on disseminated superficial actinic porokeratosis (DSAP) on my legs.  I am still not sure what DSAP really is....but here is what I've been able to find on my own...

DSAP is a very rare skin disease that is both hereditary and brought out by sun exposure and exacerbated tanning beds.  It is such a rare disorder that most doctors and dermatologist have never even seen it.  It primarily effects women but is diagnosed in men....me included...!  It is most often misdiagnosed as regular actinic keratosis.  It shows up as reddish brown spots (little circles really) and then as it progresses the outer circle  becomes hard and dark while the center atrophies a bit.  The spots can sometimes develop worrisome changes such as scaling and scaling and should be biopsied.  As rare as DSAP is it is even more rare for it to progress to cancer; however, there have been documented cases of DSAP becoming full on skin cancer.

Treatment options are limited, based on what I have read so far, to medicated creams/gels.  So far, no one other than the pharmacuetical companies think the medicated gels work.  I have already had a negative experience with one of them: Solaraze and I am still waiting to hear back from the dermatologist to get back with me for a 2nd option. 

So, at this point I have many more questions and will be continue to do my own research.  I am currently looking for another dermatologist just to get a 2nd opinion and explore my options. 

By the way, for those of you who don't know...I ride in the annual 24 Hours of Booty event in Charlotte, NC and am trying to raise money to fight cancer!  Please support me in my ride!!
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